As one of the nation’s oldest and largest pediatric hospices, Capital Caring recognizes that children from infants to adolescents who are facing chronic, life-limiting medical conditions require a specially tailored approach with compassionate, nurturing support.
Capital Caring for Kids
Surrounding Families with Care and Support
Our holistic palliative and hospice care focuses on improving the quality of life for the child and the family through expert management of pain and other physical symptoms.
To help the child and family cope with the complex issues resulting from a serious illness or condition, we provide palliative care, emotional, spiritual and other support services.
We help families sort through the difficult conflicts about choices of services and treatments and their impact on quality of life and the values of the child and family.
Thanks to our new partnership with Children’s National Medical Center (CNMC) – one of the nation’s leading pediatric hospitals – our team can now conduct virtual pediatric consultative rounds with Dr. David Steinhorn, the medical director of CNMC’s Palliative Care Program.
Pediatric Hospice and Palliative Care at Capital Caring
Board certified physician/nurse practitioner consultation in coordination with the child’s physicians and other health care providers
Nurse visits to manage pain and other symptoms
24/7 support for questions and nursing visits
Home delivery of medications and equipment
Hospice home health aides who assist with daily care needs
Social worker who helps children and families cope with emotional and practical issues
Grief counselor who helps educate families on grief and loss
Child and Family Clinical Specialist to help the whole family express emotions
Chaplain for spiritual support
Specially trained volunteers to assist the child and family
Periodic respite care at one of our in-patient care centers
Capital Caring also provides pediatric intensive inpatient symptom management at our four specialized facilities which have accommodations for overnight stays for family members. Visitors are welcome.
When a child has received a prognosis of a year or less to live, hospice care is considered the best approach to ensure the needs of the child are being met. Children on our palliative care service may transition to our hospice service if the family and medical team decide that this is the most appropriate service.
While we focus on relieving pain and managing symptoms to improve the quality of life for the child, the pediatric patients enrolled in our hospice care may continue to receive curative treatments. Families are welcome to continue receiving home health and specialized nursing care from other providers while enrolled on our hospice service.
When Should I Consider Palliative Care for My Child?
Here are the questions to ask:
Does your child suffer from pain, trouble breathing or other symptoms due to a serious ongoing illness?
Do you need help understanding and coping with your child’s disease and diagnosis?
Do you need help clarifying treatment goals and options?
Do you need assistance in making medical decisions?
Do you need help coordinating your child’s care?
If you’ve answered “yes” to most of these questions, it may be time for you to ask your child’s physician to write you a referral for a palliative care consult. You may call 800-869-2136 or click here for assistance with the referral or to ask questions.